Dialog Box


Resources and Information

These resources can help you learn more about childhood heart disease and assist you to make informed life and lifestyle choices.

COVID-19 (Coronavirus)

CHD and COVID-19 (webpage)

Information on COVID-19 for people impacted by childhood heart disease, including general advice about vaccines.

Open - CHD and COVID-19 

General Resources

The Facts (PDF)

This fact sheet provides an overview of the different types of congenital and childhood acquired heart disease, looking at some key facts and statistics.

Download - The Facts (PDF)

Also available in:

Causes (PDF)

Most cases of congenital heart defects have no known cause. Some of the known causes include genetics and environmental factors related to maternal health.

Download - Causes (PDF) 

From the Heart (Podcast)

This podcast explores stories of Australians impacted by CHD. It is for anyone impacted by congenital or childhood heart conditions.

Go To - HeartKids Podcast (webpage) 

CHD Directory

Find qualified health care professionals with CHD experience, local and national peer groups and support services in your area and online.

Go To - CHD Directory (website) 

For Parents and Carers

New diagnosis (PDF)

This fact sheet contains general information about CHD, how to manage a new diagnosis and information on how to access more support if you need it.

Download - New Diagnosis (PDF)

Also available in:

How HeartKids can support you (PDF)

This brochure explains some of the support and services HeartKids provides to individuals and families in and out of hospital.

Download - How HeartKids Can Support You (PDF)

Kimberley Cepon's Story (Video)

Kimberley has had to navigate a mental health journey of her own since bringing her heart kid Mikaela home.

Watch video - Kimberley Cepon (YouTube) 

Starting School (PDF)

This fact sheet provides an overview of some of the things to think about when your child with CHD is starting school.

Download - Starting School (PDF)

For Young People and Adults

Growing up with a heart condition: A teenager's guide (PDF)

A booklet for teens and young people providing information about growing up with a heart condition. 

Download - Booklet (PDF)

Mental health and your heart (PDF)

Information for teens and young people about mental health when living with a heart condition.

Download - Mental Health (PDF)

Sexual health and pregnancy (PDF)

Information on sex, contraception, pregnancy and family planning for people with congenital heart disease.

Download - Sex and Pregnancy (PDF)

Growing up with a heart condition (PDF)

Information on the different stages of transition and how to manage a heart condition during this time.

Download - Growing Up (PDF)

Alcohol and energy drinks (PDF)

Information to help young people with CHD make informed choices about alcohol and energy drinks.

Download - Alcohol (PDF)

Exercise (PDF)

Almost everyone with CHD can benefit from exercise but it is important to speak to your doctor so that you can do it in a way that is safe and beneficial for you.

Download - Exercise (PDF)

Immunisation (PDF)

Some young people with heart conditions may need to be extra vigilant about flu shots and other preventative vaccines that are not on the standard immunisation schedule.

Download - Immunisation (PDF)

Privacy in health care (PDF)

The information in this fact sheet explains how and why you are entitled to confidential health care.

Download - Privacy (PDF)  

Travel and travel insurance (PDF)

Information on preparing for travel and trips when you have a heart condition, including tips for travel insurance.

Download - Travel (PDF)

Adulthood with your heart condition (PDF)

It is important to maintain ongoing care for your heart disease in adulthood. This fact sheet outlines some key considerations for adults.

Download - Adulthood (PDF)

Transition stories: Kennedy Cherrington (Video)

Kennedy Cherrington is an NRLW player and a heart kid. Learn about Kennedy's journey to managing her life and heart condition independently, and what advice she has for other young heart kids.

Watch - Kennedy Cherrington (YouTube) 

For Aboriginal and Torres Strait Islander People

How do you keep your heart healthy and strong? (Video)

Four teens at the HeartKids Aboriginal and Torres Strait Islander Teen Camp in 2021 share their thoughts.

Watch - Teen Camp 2021 (YouTube) 

Davina and Paul's Story (PDF)

Davina Quartermaine talks about her family's journey with grandson Paul.

Download - Davina and Paul's Story (PDF) 

Mahli-May and the Mooney Family's Story (PDF)

Clinton and Monique Mooney talk about their family's journey with daughter Mahli-May.

Download - Mahli-May's Story (PDF) 

Mandela and Myles Yu's Story (PDF)

Mandela talks about her CHD journey with son Myles.

Download - Mandela's Story (PDF) 

Translated Resources

Filipino (Tagalog)