Dialog Box

HeartKids

Our Approach

At HeartKids, we help navigate the lifetime journey of the 64,000 Australian children, teens, and adults affected by congenital heart disease.  Our purpose is to help them and their families to lead the most fulfilling life possible and to reach their personal goals.

We are the voice for all people impacted by congenital heart disease, the largest cause of infant death in Australia.

We are guided by the following principles:

  • Person and family centred
  • Evidence based and informed
  • Collective action
  • Addressing health inequities
  • Accountable governance
  • Wellness focus
  • Sustainable

Vision Statement:

People with congenital and acquired childhood heart disease live longer, healthier and more productive lives.

Purpose:

We support heart kids and those impacted by congenital or acquired childhood heart disease through life.

Our Values:

  • Care
  • Collaborate
  • Lead
  • Perform
  • Think


HeartKids work is outcome-focused and demonstrates real impact for families impacted by congenital or childhood acquired heart disease, and for the community. Our work is focused on our four pillars of Advocacy, Information, Research and Support.

Specifically, we:



Our Approach

HeartKids is the only national not-for-profit organisation who is solely focused on supporting and advocating for all people impacted by childhood onset heart disease, one of the largest causes of infant death in Australia. Our purpose is to help them and their families to lead the most fulfilling life possible and to reach their personal goals.

Our work is community focused as we provide support, information and advocate for them to provide the best possible outcomes.

Our History

HeartKids origins stem from parents getting together to support each other. Over the last 40 years, we have and will continue to evolve.

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Governance

As a community organisation, HeartKids also has considerable legislative, administrative, and other accountabilities that need to be maintained to a high standard.

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Our Partners

HeartKids works closely with other organisations to ensure we continue to advocate for all in our community.

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