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Adult with Childhood-onset Heart Disease

Adult with Childhood-onset Heart Disease
For the first time in history, there are now more adults than children living with childhood-onset heart disease in Australia.

It is estimated that 80,000 Australians are living with a childhood-onset heart condition, of which over 32,000 are adults. There are also adults who are living with a condition acquired during childhood.

While many people may experience heart health issues in their lifetime, living with a condition since childhood presents unique needs and challenges. We understand that this is a lifetime journey and at HeartKids, our support is for life.

How we can help you

Practical support

Preparing for hospital stays

There are lots of things to organise when heading in for surgery or treatment, especially if you have to travel long distances. Our support team can help you get prepared.

Find out more about the support we can provide to you.

 Read more 

HeartKids Financial Assistance Program

We understand that a hospitalisation can turn your life upside down, especially if you are having to travel long distances or give up work to complete required treatment. In some cases, we may be able to offer financial assistance.

To find out more about eligibility, follow the link below.

Check eligibility 

Travel and accommodation subsidies

Patients impacted by childhood heart disease, who are required to travel a significant distance for specialised medical treatment, may be able to claim for travel and accommodation.

Learn more about travel and accommodation subsidies here.

Learn more

Emotional support

Professional mental health support

Our support staff can assist you to access professional support services and programs. We can provide information on talking to your doctor or GP about accessing a Mental Health Care Plan.

Learn more about the mental health support available.

 Learn more

HeartKids Helpline

If you just want to know there is someone you can call on from time to time, who will listen without judgment or getting overwhelmed, the HeartKids support team is here for you. 

Call the Helpline on 1800 432 785 (business hours) or fill in a form and we will be in touch.

Call 1800 432 785 Have us call you

Peer support


We hold regular state-based meetings and get-togethers for adults. We also hold some virtual meetups and information sessions.

Check out our events calendar to find an event near you.

 See events

HeartKids Peers as Mentors Program

Whilst every adult living with CHD journey is unique, peer mentors can offer practical assistance, share their own story, be a friendly face, a supportive shoulder and voice on the end of the phone.

Learn more about the HeartKids Peers as Mentors Program.

 Learn more

Online groups

We have an active and supportive community of thousands of heart kids, parents, adults and families on Facebook.

Join our online community now. 

Join the group

Resources for adults

Our resources are designed to give you more information about childhood heart disease. When you have a heart condition, making healthy life and lifestyle choices is extra important. These fact sheets can help you stay informed about your choices and how they impact your condition.

Follow the link below to browse our variety of online resources.

 Read fact sheets


Read the blog

Check out the HeartKids blog to read the stories and experiences of other adults with childhood heart disease.

Read now